Social and mental health characteristics of adolescents living with HIV in Mexico: Implications for adherence to Antiretroviral Treatment.

Mexico is the third Latin American country with the most children and adolescents living with human immunodeficiency virus (ALHIV). There is a lack of information on the characteristics of this population. We aimed to describe the social and mental health characteristics of Mexican ALHIV. A census was conducted of all adolescent patients with HIV at a pediatric hospital (n = 47; mean age 14.39, S.D. = 3.65) and their caregivers. We collected data on socio-demographic characteristics, family, intelligence, mental health, adverse life events, substance use, treatment, knowledge of Antiretroviral Treatment (ART) and HIV, and biomarkers. Most cases were transmitted vertically and self-reported ART adherence was above 90%. Some obstacles to adherence were medicine discomfort, believing that they did not need it, and forgetfulness. The vulnerabilities were intellectual disability, adverse life events, possible mental health problems, and little knowledge of their illness and treatment. These findings suggest the importance of interventions to improve the perception and knowledge of HIV and ART to increase ART adherence.

Validación ecológica del programa FORT (Fear of Cancer Recurrence Therapy): una adaptación del español mexicano al español castellano: reporte preliminar / Ecological validation of Fear of Cancer Recurrence Therapy from Mexican to european Spanish for breast cancer patients: Preliminary repor

Introducción: El miedo a la recaída es uno de los problemas psicológicos en los pacientes con cáncer, más específicos. El aumento en la esperanza de vida en el paciente oncológico, y la supervivencia, hace que cada vez más conozcamos las consecuencias emocionales, y vivir con el llamado Síndrome de la Espada de Damocles es sin duda una de las más importantes. Este miedo a la recaída puede llegar a ser invalidante y por ello cada vez más se elaboran programas terapéuticos para poderlo combatir. Uno de los más conocidos es el FORT (Fear of Recurrence Therapy) elaborado por Maheu y Lebel y que en este momento está siendo adaptado a otros lenguajes y culturas. Una de ellas es la adaptación de Gálvez en México. Objetivo: Nuestro objetivo en el presente trabajo preliminar es presentar los primeros datos de adaptación de esta terapia del español mexicano al europeo. Método: El procedimiento seguido es la validación ecológica propuesta por Bernal en base al consenso de dos psicooncólogas expertas. Resultados: Después de valorar el cambio de diferentes conceptos y terminologías, se han valorado de forma independiente por parte de ambas psicooncólogas, las 8 dimensiones de Bernal con un alto índice Kappa (de 0,8 a 1). Conclusiones: Este es un estudio preliminar al que le va a seguir los mismos pasos para el manual de la paciente por parte de profesionales y de pacientes con cáncer de mama (AU)

Introduction: Fear of recurrence is one of the most specific psychological problems faced by cancer patients. Their increase in life expectancy, and survival, makes them increasingly aware of the emotional consequences, and living with the so-called Sword of Damocles Syndrome is undoubtedly one of the most important. Fear of recurrence can become disabling and affect their emotional well-being, leading to the development of therapeutic programs like FORT (Fear of Recurrence Therapy) developed by Maheu and Lebel. This therapy is being adapted to different languages and cultures, including Mexican Spanish by Gálvez. Objective: In this preliminary work, we aim to present the first data on adapting FORT from Mexican Spanish to European Spanish. Methods: The procedure used was to follow the ecological validation method proposed by Bernal, by two skilled psychooncologists. Results: The assessment of different concepts and terminologies by the two psychooncologists in an independent way, the analysis yielded a high Kappa index (from 0.8 to 1) for the 8 dimensions of Bernal. Conclusions: This preliminary study will be followed by a similar process for the patient manual by professionals and breast cancer patients (AU)

Percepción por edad entre maridos de mujeres con cáncer de mama: ajuste diádico, apoyo de pareja y calidad de vida relacionada a la salud / Perception by age among spouses of women with breast cancer: Dyadic adjustment, social support and health-related quality of life

Objetivo: evaluar las diferencias y relaciones por edad respecto al apoyo de pareja, ajuste diádico y calidad de vida relacionada con la salud (CVRS) entre los esposos de pacientes con cáncer de mama (CaMa). Método: estudio transversal-correlacional; participaron 120 esposos de pacientes con CaMa, divididos en dos grupos y basados en la edad de las pacientes: jóvenes (≤40) y mayores (≥50). Se aplicaron instrumentos validados en población mexicana de ajuste diádico, apoyo de pareja y CVRS en todos los participantes. Resultados: los esposos jóvenes reportaron menores niveles de ajuste diádico y menos apoyo por parte de su pareja y mejor CVRS, en comparación con esposos de mayores. Ajuste diádico y apoyo de pareja se asociaron positivamente en ambos grupos. En los esposos jóvenes el ajuste y el apoyo de pareja se relacionaron con dimensiones específicas de CVRS: salud en general, actividades sociales y salud mental. En los esposos mayores, se encontraron asociaciones entre ajuste diádico y un mayor número de dimensiones de CVRS; mientras que el apoyo de pareja que percibieron solo se relacionó con dos dimensiones de CVRS: actividades sociales y salud mental. Conclusiones: los esposos jóvenes perciben más dificultades dentro de su relación de pareja en comparación con los esposos mayores, y para estos últimos, el ajuste de su relación está asociada con más aspectos de su CVRS. Los resultados destacan la relevancia de diseñar y proporcionar intervenciones a la diada, con diferentes objetivos, considerando su edad (AU)

Objective: To evaluate the differences and relationships by age concerning couple support, dyadic adjustment, and health-related quality of life (HRQoL) of husbands of breast cancer patients. Methods: Cross-sectional correlational study; 120 spouses of breast cancer patients were recruited. The spouses were divided into two groups, based on patients’ age: ≤40, ≥50. Dyadic adjustment, couple support and HRQoL instruments were administered. All instruments were validated in the Mexican population. Results: Young spouses reported lower levels of dyadic adjustment and perceived fewer wives’ support, whereas older spouses had a better HRQoL. Both groups observed a positive association between dyadic adjustment and couple support. In younger spouses, adjustment and support were related to some dimensions of HRQoL: general health, social activities, and emotional aspects. In older spouses, more associations were found between dyadic adjustment and HRQoL. Support perceived by spouses was only related to social activities and mental health. Conclusions: Younger spouses perceive more difficulties within their relationship than older spouses. Additionally, their relationship adjustment is associated with more aspects of their HRQoL. The results highlight the relevance of designing and providing interventions to the dyad with different objectives depending on age (AU)

Psychophysiological stress response of newly-diagnosed breast cancer patients with and without risk of metabolic syndrome / Respuesta psicofisiológica al estrés de pacientes con cáncer de mama de diagnóstico reciente, con y sin riesgo de síndrome metabólico

Abstract Introduction Little is known about how metabolic comorbidity affects stress response during breast cancer (BRCa) after a recent diagnosis. Objective To evaluate the physiological and psychological differences between the BRCa-RSxM groups and those with BRCa alone, and the influence of psychological variables and comorbidity in terms of stress response. Method Comparative non-experimental causal-descriptive study. Fifty patients recently diagnosed with BRCa (25 with BRCa and 25 with BRCa-RSxM) in a convenience sample participated. Frontal muscle activity and skin conductance were recorded in response to stressful conditions. Quality of life, perceived stress, and coping strategies scales were used. Results The presence of comorbidity (p = .001; p = .02), perceived stress (p = .004; p = .03), and social quality of life (p = .01; p = .01) influenced muscle activation and conductance during the emotional stressor (ES). Putting the stressful situation into perspective as a cognitive coping strategy was related to a decrease in activation (p = .04). An increase in physiological activation during the cognitive stressor (CS) was influenced by comorbidity (p = .05) and quality of social life (p = .01; p = .01). In turn, a decrease was influenced by the increase in age (p = .02). Discussion Physiological vulnerability, coping strategies (behavioral and cognitive), and prior learning influenced the resulting reaction during the stressful situation. Conclusion A metabolic disease, as a prelude to an oncological, may cause physiological vulnerability to respond adequately to stressful conditions.

Resumen Introducción Es poco lo que se sabe acerca de cómo afecta a una comorbilidad metabólica a la respuesta al estrés durante el cáncer de mama (CaMa) tras un diagnóstico reciente Objetivo Evaluar las diferencias fisiológicas y psicológicas entre los grupos de CaMa-RSxM y sólo con CaMa, y la influencia de las variables psicológicas y la comorbilidad en cuanto a la respuesta al estrés. Método Estudio no experimental descriptivo-causal comparativo. Participaron 50 pacientes con diagnóstico reciente de CaMa (25 en CaMa y 25 en CaMa-RSxM) en un muestreo por conveniencia. Se registraron la actividad muscular frontal y la conductancia de la piel frente a condiciones estresantes. Se aplicaron escalas de calidad de vida, estrés percibido y estrategias de afrontamiento. Resultados La presencia de la comorbilidad (p = .001; p = .02), estrés percibido (p = .004; p = .03) y la calidad de vida social (p = .01; p = .01) influyeron en la activación muscular y la conductancia durante el estresor emocional (EE). Poner en perspectiva la situación estresante como estrategia cognitiva de afrontamiento se relacionó con una disminución de la activación (p = .04). El aumento de activación fisiológica durante el estresor cognitivo (EC) estuvo influido por la comorbilidad (p = .05) y la calidad de vida social (p = .01; p = .01); a su vez, la disminución lo estuvo por el aumento en los años de edad (p = .02). Discusión La vulnerabilidad fisiológica, las estrategias de afrontamiento (conductuales y cognitivas) y el aprendizaje previo influyeron en la reacción resultante surgida durante la situación estresante. Conclusión Una enfermedad metabólica, como antesala de una oncológica, puede ocasionar vulnerabilidad fisiológica para responder adecuadamente a condiciones estresantes.

Medical and information needs among young women with breast cancer in Mexico.

OBJECTIVE: To describe clinical and information needs, identify unmet support services and guide interventions for young breast cancer (BC) patients in Mexico. METHODS: Cross-sectional, qualitative study, using interpretive description methodology. Patients with initial BC diagnosis within 6-12 months prior to enrolment, ≤40 years old and literate were included in focus groups. RESULTS: Twenty-nine patients were included. Expressed needs were classified into the following categories: (a) understanding diagnosis and treatment; (b) treatment side effects; and (c) time, source and communication means. Patients felt their medical team did not provide enough information regarding diagnosis, treatment and relevant side effects related to fertility, menopause and sexuality. Lack of information fuelled uncertainty, distress, anxiety and fear, and could negatively influence treatment decisions. Patients wished that news be communicated considering their own attitude regarding the disease and providing psychological support when necessary, including partners, relatives and friends. They recommended that information should be delivered with an empathic and personalised approach, with take-home educational material to help them recall, comprehend and/or expand verbal information received during medical appointments. CONCLUSIONS: This study provides valuable insight to increase attention on unmet needs of young BC patients and to improve doctor-patient communication to ensure better care.

Mujeres Jóvenes con Cáncer de Mama: Necesidades de Apoyo en Atención y Resiliencia / Young Women with Breast Cancer: Supportive Care Needs and Resilience

Antecedentes: las mujeres menores de 40 años con cáncer de mama (CaMa) presentan características bio-psico-sociales únicas que ameritan ser atendidas y estudiadas. Objetivo: evaluara) la percepción de necesidades de apoyo en la atención (NAT) insatisfechas y nivel de resiliencia,b) la diferencia de NAT entre pacientes en tratamiento y sobrevivientes y c) la relación entre NAT y resiliencia, y su asociación con variables clínicas y sociodemográficas, respectivamente. Método: se estudiaron transversalmente a 150 mujeres jóvenes con CaMa en tratamiento y sobrevivientes, con una encuesta de NAT y una de resiliencia mexicanas. Resultados: la mediana de edad de las participantes fue de 36 años. Las necesidades menos satisfechas fueron las de sistema de salud e información. El grupo de tratamiento presentó más NAT comparado con las sobrevivientes (p=0,005). Se encontró que cuanto más NAT insatisfechas (globales, psicológicas, cuidado y apoyo, e información), menores valores en los dominios de resiliencia (p<0,005) en ambos grupos y por separado. Conclusiones: las condiciones externas (infraestructura, servicios de salud proporcionados y apoyo en seguridad social), habilidades propias (auto-confianza, estructura y organización) y/o recursos de apoyo externo (social y familiar) pudieron contribuir a que las pacientes percibieran pocas NAT insatisfechas. Los resultados resaltan la relevancia clínica de implementar intervenciones basadas en resiliencia

Background: Women with breast cancer (BC) under 40 years of age have unique and important bio-psycho-social characteristics that should be assessed. Objective: To evaluate: a) the unmet supportive care needs (SCN) perception and the level of resilience, b) the difference in SCN between patients in active treatment and survivors, c) the relationship between SCN and resilience, in addition to its relationship with clinical, and sociodemographic variables, respectively. Method: The unmet SCN and the level of resilience were cross-sectionally assessed in 150 young women with BC. Results: Participants had a median age of 36 years. The highest unmet needs were related to the healthcare system and information needs. The most unmet needs were reported by the group undergoing treatment compared to those in surveillance (p=.005). We found a significant and negative relationship between unmet SCN (global, psychological, care and support, and information) and resilience domains (P <.005), in both groups and separately. Conclusions: The perception of low unmet needs could be caused by external conditions (such as infrastructure, health services provided and social security support), abilities' perception (such as self-confidence, structure and organization) and/or support resources perceived (social and family). These results highlight the clinical relevance to address interventions based on resilience

Special Needs of Young Women with Breast Cancer in Limited Resource Settings.

BACKGROUND: Young women with breast cancer (YWBC) comprise a group of patients with unique biopsychosocial characteristics with a special perception of needs throughout their disease and survivorship. Contexts marked by restricted allocations and economic constraints might further aggravate the struggle of these patients living within limited resource settings and can demand added requirements for them and their families. OBJECTIVE: To analytically explore the existing knowledge regarding the needs of YWBC in low- and middle- income countries (LMICs). METHODS: We conducted a thorough literature review of scientific journal databases available in Spanish and English containing information on YWBC in LMICs. RESULTS: We did not find any publications exclusively assessing this topic in resource-limited settings. We looked for data on the different types of YW need from studies in the region that assessed the needs of breast cancer (BC) patients in general and described in their findings the particularities of young patients. Young BC patients described within the literature present a variety of needs. Those reported most frequently as unmet were related to information needs and psychological counseling, practical and physical assistance, and social and spiritual support. CONCLUSIONS: Published literature on the subject - particularly in Latin America - is extremely scarce. This offers an area of opportunity for conducting further research in this topic that would help improve health professional training and establish health policies in favor of YWBC.

[Biofeedback treatment for acute whiplash patients]. / Retroalimentación biológica para pacientes con esguince cervical agudo.

BACKGROUND: The aim of this study is to evaluate the physiological and psychological effect after an electromyographic biofeedback treatment in combination with progressive muscular relaxation training in patients with acute whiplash. METHODS: Twelve patients with acute whiplash volunteered to participate in a quasi-experimental design and a control group. INCLUSION CRITERIA: Two months maximum after car accident, severity levels II and I. EXCLUSION CRITERIA: previous history of persistent pain or serious previous injury. The groups were randomly divided in two (treatment and waiting list groups). We used electromyographic measures of the trapezius muscles with psychometric tests: Beck Anxiety and Depression Inventory; Oswestry Pain Disability Questionnaire; Visual Analog Scale of Pain; TAMPA Scale for Kinesiophobia. The treatment consisted in electromyographic biofeedback after progressive muscular relaxation training. RESULTS: There were significant intra-group differences before and after treatment in muscular symmetry and subjective pain perception in the treatment group. CONCLUSIONS: We achieved a significant change (clinical and statistical) in subjective pain perception and muscular symmetry. This study highlights the importance of multidisciplinary work in acute pain patients and the effectiveness of clinical psychophysiological strategies with acute whiplash patients.

Introducción: el objetivo de este trabajo consistió en evaluar el efecto fisiológico y psicológico de la retroalimentación biológica de electromiografía de superficie (RB de EMGs) en combinación con relajación muscular progresiva (RMP) en pacientes con esguince cervical (EC) agudo. Métodos: Un total de 12 pacientes con EC agudo participaron voluntariamente en el estudio, con diseño cuasiexperimental, y grupo control. Criterios de inclusión: máximo dos meses del accidente automovilístico; gravedad I y II. Se excluyeron: pacientes con historia previa de dolor persistente, o que hayan tenido lesión seria. Se dividió en dos grupos aleatoriamente (de intervención y en lista de espera). Se realizó un registro psicofisiológico de los músculos trapecios con EMGs, en conjunto con instrumentos psicométricos: inventario de ansiedad y depresión de Beck; índice de incapacidad de Oswestry; escala visual análoga y de miedo al movimiento. La intervención consistió aplicar RB de EMGs, posterior a un entrenamiento en RMP. Resultados: el grupo de intervención disminuyó significativamente su valor de simetría muscular (permaneciendo dentro de lo normal) así como su percepción subjetiva del dolor, intragrupo antes/después de la intervención. Conclusiones: se produjo un cambio significativo (tanto clínico como estadístico) en la percepción del dolor y la actividad conjunta de músculos pares. Igualmente, muestra la relevancia de atender un problema agudo multidisciplinariamente; así como la utilidad de las estrategias psicofisiológicas clínicas en pacientes agudos de EC.